Most groups have a national office to coordinate activities, such as fund
raising, producing educational materials, lobbying
for research funding, sponsoring conferences, and putting out a newsletter.
The local groups, if there are any, usually sponsor group meetings and may
also host social events and provide informed individuals with the problems who
are ava
ilable to talk with you.
Since local support group information changes so frequently, I have provided
only the national office addresses and telephone numbers of the various
organizations. You can contact them to obtain a current listing of groups available in your area.
Allergies
College of Allergy, Asthma & Immunology (ACAAI)
85 West Algonquin Road
Suite 550
Arlington Heights, IL 60005
Phone: (847) 427-1200
Fax: (847) 427-1294
http://www.acaai.org/allergist/allergies
Asthma and Allergy Foundation of America
1233 20th Street, NW, Suite 402
Washington, DC 20036
http://www.aafa.org
Alopecia
National Alopecia Areata Foundation
710 C Street, Suite 11
Sana Fall, CA 94901
(415) 456-4644
Appearance Impairment
Cranofacial Center
Children's Hospital of Boston
300 Longwood Avenue
Boston, MA 02215
(617) 735-6000
Institute for Identity and Body Image
Box 98048
Houston, TX 77048
International Cranofacial Foundation
1021
0 North Central Expressway, LB 37
Dallas, TX 75231
(214) 368-3590
Let's Face It
P.O. Box 29972,
Bellingham, WA 98228-1972
Contact Betsy at: wilsonbets@aol.com
Cancer
American Cancer Society
1599 Clifton Road NE
Atlanta, GA 30329
1-800-227-2345
Eczema
Eczema Association for Science and Education
1221 SW Yamhill
Suite 303
Portland, OR 97205
(503) 228-4430
http://www.nationaleczema.org
This is the main U.S. eczema site. Look for my article on psychodermatology.
Talk Eczema
www.talkeczema.com is a great new site
with lots of information, support, links, and books--an important resource.
ECZEMA LISTSERVE GROUP
Join this very helpful 300 member e-mail group at
http://ourworld.compuserve.com/homepages/
David_Hough
This website also includes archives of all group postings since Oct 1995.
Herpes
Herpes Resource Center
http://sunsite.unc.edu/ASHA/
c/o American Social Health Association
P.O. Box 13827
Research Triangle Park, NC 27709
(919) 361-8488
Hidradenitis Suppurativa
Hidradenitis Suppurativa Foundation, Inc.
http://www.hs-foundation.org/
info@hs-foundation.org
7895 Via Belfiore #4
San Diego, CA 92129
Ichthyosis
F.I.R.S.T.
PO Box 20921
Raleigh NC 27619-0921
1-800-545-3286
Lupus Erythematosus
American Lupus Society
23751 Madison Street
Torrence, CA 90505
310-373-2137
Lupus Foundation of America
11921A Olive Boulevard
St. Louis, MO 63141
(314) 961-3014
Picking
Trichotillomania Learning Center, Inc.
207 McPherson Street, Suite H
Santa Cruz, CA 95060-5863
831-457-1004 (phone)
831-426-4383 (fax)
info@trich.org
This is the support group that I am most active with. They are a fantastic resource both on line and their conferences and workshops. I do hypnosis workshops at the national conference each year. Think about joining us.
Self Injurious Skin Picking Forum
http://www.selfinjuriousskinpicking.com/bb/
SaveFace Forum
http://www.network54.com/Forum/49010
Two excellent resources for skin picking and related problems.
Psoriasis
National Psoriasis Foundation
6443 Beaverton Hillsdale Highway
Suite 210
Portland, OR 97221
(503) 297-1545
They also have a very useful and well designed internet site at: http://www.psoriasis.org
Psoriasis Foundation
Northampton NN2 7JG
England
Rosacea
National Rosacea Society
800 South NorthWest Highway, Suite 200
Barrington IL, 60010
(800) NO-BLUSH
http://rosacea.org
Scleroderma
United Scleroderma Foundation
P.O. Box 399
Watsonville, CA 95077
1-800-722-HOPE
Vitiligo
Vitiligo Support International
http://www.vitiligosupport.org
I especially recommend this group as a source of information
and support. Their Conferences are excellent. I was so impressed with
their work that I joined their Scientific Advisory Board.
National Vitiligo Foundation
P.O. Box 6337,
Tyler, TX 75711
Phone: (903) 534-2925
Fax: (903) 534-8075
E-mail: 73071,33@compuserve.com
Vitiligo Group
P.O. Box 919
London SE21 8AW
England
Vulvodynia
National Vulvodynia Association
P.O. Box 4491
Silver Spring, MD 20914-4491
Phone: (301) 299-0775
Fax: (301) 299-39999
Warts (HPV, Condyloma)
ASHA/HPV
PO Box 13827
Research Triangle Park, NC 27709
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